I know it has been a while but I have been very busy and sleep deprived!! I had a terrible scare with Maggie last Thursday. She projectile vomited across the room and it came out her nose and she wasn't breathing for what seemed like forever! I kept trying to clear her mouth and stimulate her and it just kept coming out of her nose. Yes, I panicked!!! I was screaming and crying for her to breath and about to call 911 but I knew it would be too late by the time they arrived. She did finally catch her breath. I cried for hours that day. I took her to the doc because they wanted to make sure that she didn't aspirate any into her lungs and thank goodness she was clear. They said I did all the right things and gave me a few more pointers for if it happens again. They added rice cereal to her bottles for a thickener and it does seem to be helping if we can get her to eat it. She just isn't even interested in food at all. I really worry about this wee one. I have never been so scared in my life. I just pray that her reflux gets better soon and that she gets an appetite. It takes forever just to get 2.5 ozs. in her. You have to coax her the whole way. But in 8 days she did gain 10 ozs. So the docs aren't too concerned at this point. They go for their 2 month check up on Wednesday and I am anxious to see how much she gains in 6 days.
Natti B we don't have to worry about her eating!!! She lives for food!!! I bet she weighs close to 10 lbs. by Wednesday. She is so filled out and chunky and cuddly!! I should know, she spends a lot of time in bed with me!!!! She likes to be close to me. Hey, whatever it takes for sleep!!!
I have new pics but they aren't downloaded right now. I will try to post them soon.
Thank you all for your continued prayers and support. I ask that you please continue to pray for their kidney issue. They go on 11-30 for the tests to diagnose them. It will be an all day event and we are not looking forward to it. Also, please remember Maggie especially in yours prayers. Pray that the poor baby learns to love food soon!!!
Love you all,
The Reinle 6!
Monday, October 30, 2006
Monday, October 16, 2006
Big & Little
My darlings...
Here are some new pics of the most beautiful babies you have ever seen!
Natalie is on the left and Maggie on the right.
Here is Miss Natalie! Natti B I have been calling her. We did an unofficial weighing technique.....weigh big sis and then hand her a baby! He! He! Natti B weighed in at a whopping 8.4lbs!!!!!
She is getting to be a little butterball. Eats like her Momma and Daddy! Ha!
She is absolutely a joy. She is our snuggly one. Loves to cuddle and sleep with Mommy. That is when we get our best sleep.
And this is our tiny one, Miss Maggie. Her unofficial weight is 6.4lbs. So basically she hasn't gained any since last week. She is so tiny and sweet. I can't stand to hear her cry. It is just so pitiful. I call her Little Bit. Chet reminded me that I called Bri Little Bit too. Until Brianna was about 5 she was very small. Even though she weighed almost 8.3 when she was born. Maggie is our thinker. She just studies everything. We always wonder what she is thinking.
We are all doing well. I have switched to every 3 hours feeding. They actually go about 4.5 or 5 hours at night but feeding every 3 during the day gets in an extra feeding in 24 hours. It seems to be working better because they are eating more in 24 hours and I am getting more sleep. I have to work real hard to get Maggie to eat at all but she is getting a few more ounces in a 24 hour period now. She is just not interested in eating. I hope this changes soon. I can't dress them alike because they aren't wearing the same size now. Maggie is pretty much still in preemie and Natalie is in newborn and 0-3 mths.
Tomorrow is my postpartum check up and Wednesday they go to the pediatrician for the 2nd Hep B shot. I am dreading that.
Gotta go shower before feeding time again!
Wednesday, October 11, 2006
Monday's Appointments...
Their eyes look perfect! The doc says it looks like they are going to have blue eyes! They have to go back in May for a recheck and then again around 3 years old.
The urology appointment didn't really tell us much. Everything could have been discussed over the phone. They have to have two more invasive test. They will be catherized and have to have an IV to inject radioactive dye through. They are looking to see if there is a blockage in the ureters from the kidneys to the bladder and if there is reflux into the kidneys. We will know more after these tests. They will have to stay on antibiotics for years probably to prevent UTI's. That will more than likely be the only treatment until they are at least two years old "if" they do anything then. So basically this is still a wait and see situation. No really bad news but not really good news either. We are dreading the tests. They are supposed to call us back with an appointment date.
Oh we did get a little good news. Maggie is weighing in over 6lbs now! I guess the prevacid is helping her little tummy. She isn't vomiting like she was before. Natalie is over 7lbs!!!
I will try to post some new pics this weekend.
The urology appointment didn't really tell us much. Everything could have been discussed over the phone. They have to have two more invasive test. They will be catherized and have to have an IV to inject radioactive dye through. They are looking to see if there is a blockage in the ureters from the kidneys to the bladder and if there is reflux into the kidneys. We will know more after these tests. They will have to stay on antibiotics for years probably to prevent UTI's. That will more than likely be the only treatment until they are at least two years old "if" they do anything then. So basically this is still a wait and see situation. No really bad news but not really good news either. We are dreading the tests. They are supposed to call us back with an appointment date.
Oh we did get a little good news. Maggie is weighing in over 6lbs now! I guess the prevacid is helping her little tummy. She isn't vomiting like she was before. Natalie is over 7lbs!!!
I will try to post some new pics this weekend.
Friday, October 06, 2006
Thank you God!!!
Maggie's echocardiagram and EKG were perfect. Her blood pressure was good. The cardiologist says she still has a "tiny hole" in her heart but he expects it to close up just fine. It could take anywhere from 1 to 3 years. He does want to recheck her in 6 months to make sure all is continuing well but he said that he thinks she has a perfectly normal newborn heart!!!
THANK YOU FATHER GOD!!!!!!
Thank you all for your prayers!!!!!!!
Thanks for your help today Angelique!!
THANK YOU FATHER GOD!!!!!!
Thank you all for your prayers!!!!!!!
Thanks for your help today Angelique!!
Wednesday, October 04, 2006
2 appointments down this week...
We had the US's yesterday and I won't even get into what a fiasco that turned out to be! I could see myself that there was no change in their kidney status but they wouldn't tell us anything.
Today we saw the pediatrician and confirmed my fears that Maggie hasn't gained any weight this week. Doc agreed that it is probably reflux causing some of her problem and put her on prevacid. Poor thing projectile vomited this afternoon and it came out of her nose and she was choking and screaming and I cried with her. It just breaks my heart to see her in pain and not able to eat good. I pray this medicine helps.
Natalie is up to 6.12lbs! I knew she was getting close to 7 lbs. She seems so much bigger than Maggie but it is only a pound. Amazing what a difference one little pound makes.
Doc did say that the hydronephrosis was confirmed by US and something about dilated ureters in Maggie, I don't really understand and didn't ask a lot of ?'s because I would rather discuss it with the urologist on Monday. She did say that this does not mean that they will have to have a kidney removed. As long as the diseased kidney isn't causing problems there is no reason to remove it. That is a relief because I thought surgery was inevitable. Still I will feel better after talking w/the urologist. Please pray about this.
Maggie is still scheduled to see the cardiologist on Friday to check her blood pressure and the little heart defect. Hopefully it is closing up on it's own like it is supposed to. Poor thing has enough to deal with.
They are at risk for RSV and will be getting the shots this winter. They cost approximately $20,000!!!!!!!!!!!! Please pray that insurance will cover most of this cost. We are covered by my insurance, but since I am not going back to work will be picking up Chet's co. insurance. I am so afraid they won't want to cover much on the girls because they will say it is pre-existing. I guess we will know soon enough. If it isn't one worry it is another.
Thanks Kim and Stacy for your comments. Stacy I hope your little one is doing o.k.
Sorry to be long winded.......more pics later.
Today we saw the pediatrician and confirmed my fears that Maggie hasn't gained any weight this week. Doc agreed that it is probably reflux causing some of her problem and put her on prevacid. Poor thing projectile vomited this afternoon and it came out of her nose and she was choking and screaming and I cried with her. It just breaks my heart to see her in pain and not able to eat good. I pray this medicine helps.
Natalie is up to 6.12lbs! I knew she was getting close to 7 lbs. She seems so much bigger than Maggie but it is only a pound. Amazing what a difference one little pound makes.
Doc did say that the hydronephrosis was confirmed by US and something about dilated ureters in Maggie, I don't really understand and didn't ask a lot of ?'s because I would rather discuss it with the urologist on Monday. She did say that this does not mean that they will have to have a kidney removed. As long as the diseased kidney isn't causing problems there is no reason to remove it. That is a relief because I thought surgery was inevitable. Still I will feel better after talking w/the urologist. Please pray about this.
Maggie is still scheduled to see the cardiologist on Friday to check her blood pressure and the little heart defect. Hopefully it is closing up on it's own like it is supposed to. Poor thing has enough to deal with.
They are at risk for RSV and will be getting the shots this winter. They cost approximately $20,000!!!!!!!!!!!! Please pray that insurance will cover most of this cost. We are covered by my insurance, but since I am not going back to work will be picking up Chet's co. insurance. I am so afraid they won't want to cover much on the girls because they will say it is pre-existing. I guess we will know soon enough. If it isn't one worry it is another.
Thanks Kim and Stacy for your comments. Stacy I hope your little one is doing o.k.
Sorry to be long winded.......more pics later.
Sunday, October 01, 2006
New Pics!
They both had a bath Saturday night and we all got a little sleep!! Woo! Hoo!! How many times a day can I bath them?? Ha! Ha! Anything for some sleep!!! Bri had to have her baby in the pic too. She has been heating up it's bottle, feeding and burping it everytime I do the girls! Yes, I am as tired as I look!! Don't Mag and Nat look adorable in their little hats?? Thanks Angelique!! This week starts all of our appointments. We have their renal US's on Tuesday, Pediatrician on Wednesday, and Maggie sees the cardiologist on Friday. Busy week! Next week is almost the same! Oh well, this is the new normal for us. But we sure are lovin all these girls!!
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