Saturday, December 16, 2006

Merry Christmas!!!




I just wanted to wish everyone Merry Christmas before I leave for TN tomorrow and post this new pic. Isn't it adorable?? Natti is on the left and Maggie on the right.
God bless all of you and your families and I pray you have the Merriest Christmas!!!

Friday, December 08, 2006

Nothing new really...


The urologist office called on Monday and Maggie has another UTI. My suspicion is that she never got rid of the last one she had and probably won't get rid of this one at least not for long either. Not with urine just sitting in her kidney and not draining. So I decided to go ahead with the next scan in January but I do want a long term plan from the doc after that.

Monday night was the Mother/Daughter Christmas tea at church. We left Dad with the twins alone for the first time!!! and according to him the last time!! He says I can do it but I have to have Bri's help too. He said "how do you do it by yourself?" My reply of course, "I don't have a choice!" There is no other option so suck it up!!! and get it done!!!

On the way to the tea Bri and I were listening to Christmas music and singing along when I looked in the mirror she was grinning from ear to ear and I asked what she was smiling about. She told me nothing 3 times and finally the last time I said come on tell me what you are smiling about and she said "I just you love you that's all!" Awwwwwwwww..... Made my day!!! I just love that kid too!! All evening she kept telling me "Mommy you are so pretty and I love you so much"!! I guess she needed some one on one Mommy time. For so long it was me and her and then her world got turned upside down. We had a great time and Dad took a pic by the tree before we left. I just got all my hair cut off! It makes my head look huge, hee, hee! Or maybe my head was already huge. I gotta get this weight off!! Maybe after the winter when we can come out of hibernation!!!

Thanks for your replies Laura, Kim and Stacy!! Your support really helps me along.

Friday, December 01, 2006

The dreaded day was as bad as I feared...

What a horribly long day! 1st we arrived at 7:30am and had to wait forever just to get registered. Both girls were getting grumpy because it was time to eat and we were told not to feed them after 4am because they were going to be sedated. Almost two hours after our arrival they called us back to get their IV's and catherization only to be told that they were too young to sedate. O.K. I am seriously aggravated at this point. They decide to catherize each one and then put in their IV's. It took two tries to get in Natalie's and I am not a happy Mom. Maggie's cath went pretty smoothly. IV's were a nightmare. They stuck poor Natalie 3 times before getting a vein!!!! I was pissed! After two tries on Maggie I told them to get somebody that could hit a vein on the first try. We ended up taking her to pre-op and this really nice, competent, male nurse hit it on the first try. By this time the girls were so upset they wouldn't eat. The first test was the nuclear scan. They filled the girls with IV fluids and dye and put them into a machine, looked kind of like an MRI machine and they could watch what was happening with the fluids in their kidneys. Then they put lasix into the IV to make them pass the fluids. They next test was to flush saline and dye into the catheter's and watch it. By the time we got to that department both of their catheters were out and they had to be catherized again!!!! I think the nurse we had first thing that morning was pretty incompetent!! Then we were off to the urologists office for the results. In a nutshell the tests showed that both kidneys on both girls are functioning just as they should. The problem is that there is a blockage in the ureters that go from the kidneys to the bladder. Natalie's is draining, albeit slowly, but they think with time it will open up and be completely normal. They just want to watch it for now. She is scheduled for another renal US January 5th. Maggie's bad side is not draining at all or only dripping and they can't even see it. So her kidney is staying full of urine all the time. They still think that she will outgrow it. Worse case scenario is surgery to remove the blocked portion of the ureter and reattach it. But they won't do that until they have to. She is scheduled for a renal US and another Nuclear Scan on January 5th. They promised me that they will sedate her this time!!! We finally arrive home after 3pm, very long day!
The more I think about it though, I am going to call the doc back on Monday. 1 month!!! How much can possibly change in one month? What will they do if there is no change? Is it really worth putting my baby thru that trauma again so soon? The US's are no big deal and pain free, but I can't stand all that poking and the drugs they will have to pump into Maggie for the scan. If they aren't going to do anything else no matter what the results then why not wait 2 months or 3?
Anywho, not really bad news but not great news. We are happy to know that the kidneys are functioning well. Please continue to keep our sweeties in your prayers. This is not over. Thank you all that are praying for them and thanks for all of your email and comments.
Thanks Laura and Kim!!
I think everybody is finally asleep and I am going to bed too, afterall, it is midnight!!