What a horribly long day! 1st we arrived at 7:30am and had to wait forever just to get registered. Both girls were getting grumpy because it was time to eat and we were told not to feed them after 4am because they were going to be sedated. Almost two hours after our arrival they called us back to get their IV's and catherization only to be told that they were too young to sedate. O.K. I am seriously aggravated at this point. They decide to catherize each one and then put in their IV's. It took two tries to get in Natalie's and I am not a happy Mom. Maggie's cath went pretty smoothly. IV's were a nightmare. They stuck poor Natalie 3 times before getting a vein!!!! I was pissed! After two tries on Maggie I told them to get somebody that could hit a vein on the first try. We ended up taking her to pre-op and this really nice, competent, male nurse hit it on the first try. By this time the girls were so upset they wouldn't eat. The first test was the nuclear scan. They filled the girls with IV fluids and dye and put them into a machine, looked kind of like an MRI machine and they could watch what was happening with the fluids in their kidneys. Then they put lasix into the IV to make them pass the fluids. They next test was to flush saline and dye into the catheter's and watch it. By the time we got to that department both of their catheters were out and they had to be catherized again!!!! I think the nurse we had first thing that morning was pretty incompetent!! Then we were off to the urologists office for the results. In a nutshell the tests showed that both kidneys on both girls are functioning just as they should. The problem is that there is a blockage in the ureters that go from the kidneys to the bladder. Natalie's is draining, albeit slowly, but they think with time it will open up and be completely normal. They just want to watch it for now. She is scheduled for another renal US January 5th. Maggie's bad side is not draining at all or only dripping and they can't even see it. So her kidney is staying full of urine all the time. They still think that she will outgrow it. Worse case scenario is surgery to remove the blocked portion of the ureter and reattach it. But they won't do that until they have to. She is scheduled for a renal US and another Nuclear Scan on January 5th. They promised me that they will sedate her this time!!! We finally arrive home after 3pm, very long day!
The more I think about it though, I am going to call the doc back on Monday. 1 month!!! How much can possibly change in one month? What will they do if there is no change? Is it really worth putting my baby thru that trauma again so soon? The US's are no big deal and pain free, but I can't stand all that poking and the drugs they will have to pump into Maggie for the scan. If they aren't going to do anything else no matter what the results then why not wait 2 months or 3?
Anywho, not really bad news but not great news. We are happy to know that the kidneys are functioning well. Please continue to keep our sweeties in your prayers. This is not over. Thank you all that are praying for them and thanks for all of your email and comments.
Thanks Laura and Kim!!
I think everybody is finally asleep and I am going to bed too, afterall, it is midnight!!
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2 comments:
Angie,
That experience sounds so terrible! I cannot even believe that, you must have been exhausted from all that stress. Nothing is worse than watch your babies go through that kind of stuff, UGH!
I am sorry the news wasn't perfect...I know hearing it's nothing they are fine is what you wanted. No one wants these things to drag out, but it does sound like there is hope it still will take care of itself on its own. It just doesn't seem fair you should have to wait to see that outcome, it seems like you have paid your dues on the be patient wait to see the outcome front! Either way I am glad the girls were ok, and things will improve soon I hope. I agree with you I wouldn't want to subject my babies or myself to that testing any sooner than necessary! I hope you got some rest, and I hope things start making a big turn around soon!
angie, i am soo sorry you had such a bad experience. it is good news i think that their kidneys are working properly and that there is still hope for the problem to correct itself. i know it was not the nest news, but it wasn't the worst either. we will just all pray for the girls to heal all on their own. i agree that one month does seem a little soon to be putting your babies through all that, but then again i am not a dr. it does seem more approrpiate to wait for 2-3 mo. anyway, your girls are adorable (all 3 of them). the twins are growing sooo fast. i hope you have a great evening!
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